Source avec lien : American Journal of Industrial Medicine, (Prépublication), 2019/11/07. 10.1002/ajim.23069
L’association entre l’exposition à l’amiante et le mésothéliome malin a été bien établie, ce qui a incité plusieurs pays à établir des programmes de surveillance épidémiologique du mésothéliome. Cet examen compare les registres de mésothéliome existants dans le monde entier afin de développer un modèle conceptuel pour un registre de mésothéliome de capture de cas en temps réel.
The association between asbestos exposure, mainly in occupational settings, and malignant mesothelioma has been well established; this has prompted several countries to establish mesothelioma epidemiologic surveillance programs often at the request of national agencies. This review compares currently existing mesothelioma registries worldwide to develop a concept model for a US real-time case capture mesothelioma registry. Five countries were identified with a mesothelioma specific registry, including Italy, France, UK, Australia, and South Korea. All, except the UK, used interviews to collect exposure data. Linkage with the national death index was available or was in future plans for all registries. The registries have limited information on treatment, quality of life, and other patient-centered outcomes such as symptoms and pain management. To thoroughly collect exposure data, “real-time” enrollment is preferable; to maximize the capture of mesothelioma cases, optimal coverage, and a simplified consent process are needed.