Source avec lien : Mortality, Prépublication, 2/17/2019. 10.1080/13576275.2019.1572085
Les souffrances et l’épuisement des soignants parmi les professionnels des milieux de soins palliatifs sont de plus en plus discutés dans les médias et les revues spécialisées. Cependant, nous n’avons toujours pas de compréhension anthropologique des liens entre cette détresse et la dynamique, les pratiques et les représentations des établissements de soins palliatifs. Cet article, basé sur un travail de terrain mené en 2011-2012 dans l’un des 27 hospices indépendants de la province de Québec, vise à contribuer à la question en montrant comment les employés conçoivent leur rôle en matière de prise en charge des mourants.
Caregiver suffering and burnout amongst professionals in palliative care settings are increasingly discussed phenomena in the media and the specialized journals alike. However, we still lack anthropological understandings of the ways this distress is related to the dynamics, practices and representations of palliative care institutions. This article, based on a 2011-2012 fieldwork conducted in one of the 27 independent hospices of the province of Quebec, aims to contribute to the question in showing how the ways the staff conceive their roles in caring for the dying. We aim to explore how the suffering is related to the nature of these roles and to the institutional framework, the Good Death. Within the institution that was the focus of this research, caregivers must carry out the double-task of protecting themselves psychologically (finding the appropriate distance) and negotiating the institutional and ideological pressure to embody the palliative mission. If the non-monetary rewards or sources of satisfaction related to the exercise of the profession are not sufficient – or simply missing for logistical reasons, temporal reasons or others – it is very likely that end-of-life work will become an unbearable burden for certain caregivers and will lead to resignations.
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